http://laps4lucy.wordpress.com/
Wednesday, June 24, 2009
Saturday, June 13, 2009
Pledge Form for Laps4Lucy
Laps for Lucy Fundraising Event
Saturday, June 27, 2009 9AM
Oak Park River Forest High School Track
Lake Street and East Avenue
All Proceeds go to the National Ataxia Foundation
Dear Friends of "Lucy",
Over 150,000 Americans and their families suffer from the devastating effects of Ataxia. But with your participation in the 2009 Laps For Lucy, we can collectively bring the world one step closer to a cure for Ataxia.
More then just a fundraising event, Laps For Lucy is a celebration for an entire community. The donations received will fund countless programs, services and research, but the event itself creates a hope-filled and fun atmosphere for everyone affected by ataxia. It is also a very personal way to share your stories on how “Lucy” has made an impact on your life.We hope the day will help generate a greater awareness of ataxia in the Oak Park area.
So, please plan to join us and share your stories around the track. Families and Children of all Ages, are especially encouraged to join us. This is a Family Event!
Here are some ways you can raise support prior to June 27, 2009!
Sponsor yourself $15-50
Ask relatives, friends, neighbors and co workers to sponsor you
Ask two - six local businesses or companies that you deal with through work or frequent personal business (barber/hairstylist or favorite restaurants) to sponsor you.
Bring the pledge form on Saturday, June 27, 2009. Arrive early. Gates will be open at 8:15AM
Bring water, your energy and encouragement, as we support Lucy and others affected by Ataxia.
__________________________________________________________________
LAPS FOR LUCY PLEDGE FORM
Lucy’s Friend’s Name_______________________Address______________________________
Phone___________________________________________________________
Collect sponsorship money and don’t forget to sponsor yourself. Your friends, neighbors, co-workers and family can help you raise funds. All sponsors that complete this form will receive a donation receipt after the event date. Make checks out to The National Ataxia Foundation. All donations go directly to The National Ataxia Foundation.
Please bring your contributions with this registration/sponsor sign up sheet to the event registration are on the day of the event.
Sponsor’ Name Mailing Address City, State, Zip Code e-mail Pledge Amount
1. Lucy's friend 123 Main Street Anytown, MA 12345 LUCY.com $20.00
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
12.
13.
14.
15.
16.
17.
18.
Saturday, June 27, 2009 9AM
Oak Park River Forest High School Track
Lake Street and East Avenue
All Proceeds go to the National Ataxia Foundation
Dear Friends of "Lucy",
Over 150,000 Americans and their families suffer from the devastating effects of Ataxia. But with your participation in the 2009 Laps For Lucy, we can collectively bring the world one step closer to a cure for Ataxia.
More then just a fundraising event, Laps For Lucy is a celebration for an entire community. The donations received will fund countless programs, services and research, but the event itself creates a hope-filled and fun atmosphere for everyone affected by ataxia. It is also a very personal way to share your stories on how “Lucy” has made an impact on your life.We hope the day will help generate a greater awareness of ataxia in the Oak Park area.
So, please plan to join us and share your stories around the track. Families and Children of all Ages, are especially encouraged to join us. This is a Family Event!
Here are some ways you can raise support prior to June 27, 2009!
Sponsor yourself $15-50
Ask relatives, friends, neighbors and co workers to sponsor you
Ask two - six local businesses or companies that you deal with through work or frequent personal business (barber/hairstylist or favorite restaurants) to sponsor you.
Bring the pledge form on Saturday, June 27, 2009. Arrive early. Gates will be open at 8:15AM
Bring water, your energy and encouragement, as we support Lucy and others affected by Ataxia.
__________________________________________________________________
LAPS FOR LUCY PLEDGE FORM
Lucy’s Friend’s Name_______________________Address______________________________
Phone___________________________________________________________
Collect sponsorship money and don’t forget to sponsor yourself. Your friends, neighbors, co-workers and family can help you raise funds. All sponsors that complete this form will receive a donation receipt after the event date. Make checks out to The National Ataxia Foundation. All donations go directly to The National Ataxia Foundation.
Please bring your contributions with this registration/sponsor sign up sheet to the event registration are on the day of the event.
Sponsor’ Name Mailing Address City, State, Zip Code e-mail Pledge Amount
1. Lucy's friend 123 Main Street Anytown, MA 12345 LUCY.com $20.00
2.
3.
4.
5.
6.
7.
8.
9.
10.
11.
12.
13.
14.
15.
16.
17.
18.
Ray's Story
Our Laps4Lucy fundraiser all began, with our son, Ray. A few months ago, he had an assignment for his 8th grade writing class. He wrote "Losing Lucy," which he shared with us after it had been turned into his teacher. This came following a very difficult time for our family, in April, following many weeks of hospitalizations.
One by one, our family read Ray's story, alone in different corners of the home, crying through his honest sharing of his feelings. Ray's story has encouraged our family to openly discuss our feelings, as we know we draw nearer to "Losing Lucy."
We would like to share his story with you:
LOSING LUCY
By: RAY GASKILL
Quotes
“One man’s loss is so much to change his view of life”
“Life is a precise gift and should be cherished every second every day”
“Love is something that everyone has even if you deny it you still have it”
“Make every second on Earth count for something special or someone special”
Quotes: Ray Gaskill
Losing Lucy
My name is Peter I live in Creek Forest, Illinois. Me and my large family of fourteen live on the block of 601 Ashley Av. Or you could say that we are the only family on the block that doesn’t have a fence. My family members are: Phyllis, Kate, Jenny, Anne, Rose, Skye, Joy, Grace, Jane, Ellen, and Lucy. The boys are Dan, Ed, and Peter, or me. My parents are Bob and Catherine Gaskell. Our pets are Maggie (a black lab part German Sheppard), Molly (a pure bred golden retriever), Rocky and Sunny (my two toads), and the fish. Well there’s the whole gang but this story is really about the bond between Lucy and me. Lucy is my two-and-a-half year-old baby sister. Lucy is an African American, brown-haired, 50-pound, and is about 3 feet tall. She has a genetic disease called SCA7 (Spinocerebellar Ataxia 7) which will eventually shut down all her abilities to walk, see, talk, breathe, think, and pump blood to her heart thus killing her. But I’m only going to tell you about our bond and not the family’s bond with her even though it’s really strong. When I was in seventh grade I loved to run for the fun of it but when Lucy’s SCA7 kicked in I didn’t run for the fun of it, I ran to run away from my problems. After every time I ran I felt better and it really relieved me. But when she couldn’t walk any more I was astonished that there was such a ruthless disease like that. It took a lot out of her. But when winter hit I couldn’t run anymore because it was too cold outside and I had no access to the family treadmill. So I just spent more time with Lucy and that’s when our bond started to grow larger and larger. Then during that period of time we had our special times together. Like for instance the time Lucy and I were playing hide ‘n’ go seek I said it was her turn to find me and she said “MEEEE” but in a really low voice I thought it was hysterical! But on December 1, 2045 she stopped eating well with her mouth. When we went to the doctor’s office they said she needed to get a feeding tube (the food is a liquid that travels into a small tube and is connected to a button that goes into her stomach). During that period of time she had to stay in the hospital so around 5:00 am every day I went to the hospital with my mother and spent time with Lucy, The day she had to go into surgery I was there too and she went in at about 11:00am to 3:00pm until 3:10 pm her heartbeats had vanished. They said that she was being taken over by an ant sized tumor that they removed but was stuck to her nerve and when they removed it she went into shock and stopped functioning thus dying. After three long years of grief and sorrow I decided to start running again. But now I run for kids who have SCA7. We don’t only just run we get sponsored by stores and get paid for every mile we run. By making that money we help kids with SCA7 by using the money to buy tools to help research their disabilities and try to find a cure to get rid of this horrible disease. Hopefully though, in the future people will not have to lose such close relatives to them. But running is not just running to me, it’s like a super power because every time I run I see my baby sister Lucy. I will never ever forget my two and half baby sister Lucy Gaskell.
THE END
One by one, our family read Ray's story, alone in different corners of the home, crying through his honest sharing of his feelings. Ray's story has encouraged our family to openly discuss our feelings, as we know we draw nearer to "Losing Lucy."
We would like to share his story with you:
LOSING LUCY
By: RAY GASKILL
Quotes
“One man’s loss is so much to change his view of life”
“Life is a precise gift and should be cherished every second every day”
“Love is something that everyone has even if you deny it you still have it”
“Make every second on Earth count for something special or someone special”
Quotes: Ray Gaskill
Losing Lucy
My name is Peter I live in Creek Forest, Illinois. Me and my large family of fourteen live on the block of 601 Ashley Av. Or you could say that we are the only family on the block that doesn’t have a fence. My family members are: Phyllis, Kate, Jenny, Anne, Rose, Skye, Joy, Grace, Jane, Ellen, and Lucy. The boys are Dan, Ed, and Peter, or me. My parents are Bob and Catherine Gaskell. Our pets are Maggie (a black lab part German Sheppard), Molly (a pure bred golden retriever), Rocky and Sunny (my two toads), and the fish. Well there’s the whole gang but this story is really about the bond between Lucy and me. Lucy is my two-and-a-half year-old baby sister. Lucy is an African American, brown-haired, 50-pound, and is about 3 feet tall. She has a genetic disease called SCA7 (Spinocerebellar Ataxia 7) which will eventually shut down all her abilities to walk, see, talk, breathe, think, and pump blood to her heart thus killing her. But I’m only going to tell you about our bond and not the family’s bond with her even though it’s really strong. When I was in seventh grade I loved to run for the fun of it but when Lucy’s SCA7 kicked in I didn’t run for the fun of it, I ran to run away from my problems. After every time I ran I felt better and it really relieved me. But when she couldn’t walk any more I was astonished that there was such a ruthless disease like that. It took a lot out of her. But when winter hit I couldn’t run anymore because it was too cold outside and I had no access to the family treadmill. So I just spent more time with Lucy and that’s when our bond started to grow larger and larger. Then during that period of time we had our special times together. Like for instance the time Lucy and I were playing hide ‘n’ go seek I said it was her turn to find me and she said “MEEEE” but in a really low voice I thought it was hysterical! But on December 1, 2045 she stopped eating well with her mouth. When we went to the doctor’s office they said she needed to get a feeding tube (the food is a liquid that travels into a small tube and is connected to a button that goes into her stomach). During that period of time she had to stay in the hospital so around 5:00 am every day I went to the hospital with my mother and spent time with Lucy, The day she had to go into surgery I was there too and she went in at about 11:00am to 3:00pm until 3:10 pm her heartbeats had vanished. They said that she was being taken over by an ant sized tumor that they removed but was stuck to her nerve and when they removed it she went into shock and stopped functioning thus dying. After three long years of grief and sorrow I decided to start running again. But now I run for kids who have SCA7. We don’t only just run we get sponsored by stores and get paid for every mile we run. By making that money we help kids with SCA7 by using the money to buy tools to help research their disabilities and try to find a cure to get rid of this horrible disease. Hopefully though, in the future people will not have to lose such close relatives to them. But running is not just running to me, it’s like a super power because every time I run I see my baby sister Lucy. I will never ever forget my two and half baby sister Lucy Gaskell.
THE END
Laps4Lucy....2 weeks to go!
Two weeks from today will be our fundraiser for The National Ataxia Foundation! Much more than a fundraiser, the morning will be a celebration of the love and sharing of our family and friends through "Lucy's" life.
"Lucy" turned three years old yesterday. Her favorite gift is her purple balloon, which she keeps close to her, due to her quick loss of vision. She loves to watch the outline of the balloon move through the air, so freely, unlike, her frail little body.
The run will begin at 9AM on Saturday, June 27, 2009. Registration will begin at 8:15AM. We are grateful to Oak Park RiverForest High School for the use of their track, and their support.
There is no charge to participate in the Laps4Lucy. We are thankful for pledges or donations, which will go to the National Ataxia Foundation. Please consider asking your friends and neighbors to support you and your family with a pledge or donation made to the National Ataxia Foundation. A pledge form is attached.
"Lucy" turned three years old yesterday. Her favorite gift is her purple balloon, which she keeps close to her, due to her quick loss of vision. She loves to watch the outline of the balloon move through the air, so freely, unlike, her frail little body.
The run will begin at 9AM on Saturday, June 27, 2009. Registration will begin at 8:15AM. We are grateful to Oak Park RiverForest High School for the use of their track, and their support.
There is no charge to participate in the Laps4Lucy. We are thankful for pledges or donations, which will go to the National Ataxia Foundation. Please consider asking your friends and neighbors to support you and your family with a pledge or donation made to the National Ataxia Foundation. A pledge form is attached.
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